James' first time at church

Today was a very special day for our family. Jay, Nana (Jay's mother Harriet), James and myself went to church together for the first time.

James is on prayer lists all over the country and that is no exaggeration. We have even had phone calls from people whom we have never met, telling us that James is on their prayer list. Our special guy even made it onto the Shriner's prayer list. Talk about a support system! The least we could do was to start him early with his devotion to God.

You can read into things to make them fit your current situation, but sometimes I feel that they happen for a reason. For example, the message today was about taking that first step even though you do no know what is down the road ahead. Kind of like what we are going through with James. Sure, we know that we have many more bumps in the road , maybe even some blocks. But, that is not going to deter us from taking it step by step with a positive outlook at what lies ahead.

Speaking of what lies ahead, James goes in for a follow up VCUG (Dye x-ray test) and sonogram on Friday. Jay and I are very anxious to see the extent of James' kidney damage. We know they are not going to be normal, or probably even close to normal. But we are hopeful that there is enough good tissue left, so he does not need a transplant.




 

James with his big brother Jamison

I kept things a little light and to the point in my previous post. Mostly because I am new at blogging and partly because it is still hard for me to share all of the details about the state of James' health. Though, after sharing my advice and story, I realized that not only is this blog good for other people seeking support but it has also been therapeutic for me, making it easier to be more open about our situation. With that said, PUV is a very serious condition, and our sweet baby James has had a hard fight and continues to do so. Looking at him you would think he is the healthiest baby boy in the world. But inside his system is working hard to recover from major trauma. We weren't sure if he was going to make it home from the NICU, this was all new to us. Like I said, Jay and I are not doctors, we had a lot of questions and did not know what to expect. To be honest, we still don't know what to expect. Then again, no one knows what the next day will hold for them. Enjoy life, appreciate your loved  and keep the spirit of the Lord in heart. Only God knows what our future holds, how many more tears we have to shed and how many more smiles we have to share.



Please post your prayer request. They do not have to be PUV related. As God's servants, my family and I would be more than happy to include you in our daily prayers.



Please check back soon for a PUV update.

James with his Great Grandmom